Wednesday, December 08, 2010

The Boy Wonder (and his Mother) Needs Your Prayers **Updated**

UPDATED: So our visit with the doctor was this afternoon and he did a very (and I mean very) thorough exam on Caleb. With all our visits with medical practitioners through the years, Caleb has never had an exam where everything was looked at, all at once, with regard to his overall health, so this was refreshing and calming to a mama's nervous heart. It also gave the doctor the opportunity to evaluate Caleb in all aspects of his life, not just his basic health.
The overall result was that, yes, there seems to be some issues with the fact that Caleb's joints, most all of them, are overly flexible, but he has no other issues that would really form the diagnosis of anything super serious.
What we do have, for now, is a diagnosis of hyperflexibility. Basically, what this means is that his joints can dislocate much easier and he may have some real pain during growth. Frankly, I had significant pain during my formative years, especially those when I was growing large amounts at a time. One summer, I added 4-6 inches to my height and I remember that summer well because of the unrelenting pain that never seemed to end. I'm thinking that this was something, once again, that he got from me. Poor kid.
While I hate this for Caleb and I certainly don't want him to suffer at all, at least this way we will know what is going on. Since he has a diagnosis on the books too, we will have a fabulous doctor who will be evaluating him at every visit for problems and issues so that we can head them off at the pass.
Our doctor is going to consult with an orthopedist, just to make sure, but he was very confident that this was the issue.
I'll update if there is anything different that comes up in the coming days.
Thank you all for your well wishes and prayers.

About a year ago, I noticed Caleb had a popping sound coming from, what I thought, was his hip area. When he was in the NICU, one of his more minor issues that we were watching was the fact that one of his hip joints was "loose". It wasn't a huge issue, completely overshadowed by the more serious things, and seemed to resolve on its own. That's why when I heard that, I intially didn't think much of it.
Back in August, I realized that the popping noise was actually coming from his knee, and seemed to be getting louder. Now, I have one knee that has been looked at by more than one orthopedist and they all said that my ligaments are loose, so I was thinking that the same thing would be said of his. I took him to the doctor last week, partially to get it looked at before the end of the year and also because my mommy gut kept telling me to do it.
Well, during the work up, our wonderful nurse practitioner noticed that Caleb is super flexible and wondered outloud if this could be something more. Needless to say, knowing what I know about the human body and what can go wrong, my mind has since jumped from bad to worse.
The NP told me that she would discuss with our normal doc and call me back and he wants to see him.
We are going today.
I'm a nervous wreck.
This could be nothing or something completely life changing and life threatening. I'm seriously praying for the former.

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